courtesy from Dr. Ken Pope:
show details Nov 20 (3 days ago)
From time to time I've circulated excerpts from articles by Katherine
Ellison, a Pulitzer Prize-winning reporter, as well as a very
enthusiastic recommendation for her new book, *Buzz: A Year of Paying
Attention.*
Tomorrow's *Washington Post* (Sunday, Nov 21) includes Katherine's new
article: "Doing battle with the ADHD-industrial complex."
Here are some excerpts:
[begin excerpts]
As the mother of a teenager who got a diagnosis of attention-deficit/
hyperactivity disorder in 2004, I wasn't surprised to read the new
report from the Centers for Disease Control and Prevention that said the
number of ADHD cases in children jumped by 22 percent between 2003 and
2007 - an increase of 1 million kids.
From the day my son started school, I've watched popular awareness of
disabling distraction rise, to the point where it's easy to believe the
CDC estimate that one in 10 U.S. children - a total of 5.4 million kids
- now has ADHD, as reported by their families.
This might even be positive news, in that at least some kids who need
medical attention are getting it.
Except for one problem.
Growing along with those numbers is one of the most aggressive,
lucrative, bewildering and often just plain useless sales forces
humanity has ever seen - call it the ADHD-industrial complex.
This includes not only the U.S. pharmaceutical industry, which by one
measure sells more than $5 billion worth of ADHD medications each year -
and which only in the United States and New Zealand may market directly
to the public - but a growing league of all-but-unregulated, usually
costly and sometimes wildly imaginative alternatives, including herbal
supplements, complicated exercise regimes to stimulate specific brain
regions, magnetic mattresses, personal coaches and therapy "assisted" by
dolphins.
The ADHD industry's exuberance matches the vulnerability of its target
market: millions of desperate parents who, given the strongly hereditary
nature of ADHD, are often just as distracted and impulsive as their progeny.
Oh, did I mention that I got my own ADHD diagnosis at age 50, just a few
months after my son's?
This double whammy inspired me to spend a year investigating the grab
bag of symptoms constituting the current definition of ADHD and trying
to figure out the best ways to cope.
I was extra-motivated to seek non-pharmaceutical treatments when my son
balked at continuing to take stimulant medications after a year-long
trial - about the average amount of time kids will keep taking them, as
I later learned, and a big reason pills usually aren't reliable as a
single or long-term strategy.
In the course of my year of focusing on distraction, I got my head
examined by Daniel Amen, the legendary Southern California clinician who
says he can detect ADHD with a brain scan for $2,000; tried stimulant
meds for myself; stretched my equity loan to pay for scores of sessions
of neurofeedback (a computer-based treatment in which a therapist helps
you train your brain to function better); and even went on a five-day
silent meditation retreat, which I only just managed to survive.
I fed my son fish oil capsules until the aftertaste made him rebel,
subjected him to two days of neuropsychological tests ($4,000), hired
pricey tutors and summoned my nerve to lobby public schools to grant him
special accommodations, such as being allowed to chew gum while studying
algebra.
We did not, however, after due consideration, send in his hair follicles
for lab analysis to detect heavy metals or purchase custom-made colored
contact lenses, on the chance that his problem was not actually ADHD but
a controversial perceptual disorder known as scotopic sensitivity syndrome.
I also skipped the dolphin therapy after learning enough to suspect that
it was not only a waste of money but really unkind to the dolphins.
And despite often-Herculean efforts on the part of their families,
millions of kids may still end up fulfilling the direst outcomes of this
diagnosis, including higher rates of high school dropouts, unemployment,
teen pregnancy, car accidents, depression, anxiety and jail.
I was lucky: I was in a nice, supportive marriage, and my contract to
write a book on the subject gave me a handy professional excuse to call
up experts for advice.
Even so, I joined many other parents in anxiously watching my son's self-
esteem erode while a succession of teachers judged him lazy, troublesome
and - they implied - poorly parented.
If I, with all my advantages, had so much trouble dealing with the
academic train wreck, how much can we expect of parents who may be
divorced, working overtime and/or intimidated by hucksters online and
off, including the flood of self-help books with such optimistic titles
as "Dr. Bob's Guide to Stop ADHD in 18 Days?"
I am relieved to report that despite many setbacks, my son and I made
some progress by the end of my year.
Looking back, I suspect that his time on medication helped us out of a
crisis and gave him a useful taste of what it felt like to have more
self-control.
It may also be true that our budget-breaking neurofeedback treatments
helped curb his irritability and my anxiety.
At the same time, I discovered that some of the most effective
interventions are also the simplest and cheapest.
Such as educating myself enough to know how much of my son's behavior is
truly within his control.
Regular physical exercise, I found, can also be hugely helpful - and
this strategy is backed by a significant amount of research.
Russell Barkley, a leading ADHD researcher, cites studies showing that
rigorous exercise can increase the brain's capacity for willpower and
emotional self-control, arguably the most important skills lacking in
many of the clinically distracted.
So too, he says, can maintaining adequate levels of glucose, which has
led me to stop pestering my wiry, active son about his many trips to the
refrigerator.
Another useful (and cheap) strategy was abandoning my sheepishness
around my son's teachers and principals and visiting them early,
insistently and often.
Despite growing awareness about ADHD (the National Library of Medicine
lists more than 18,000 papers and articles on the disorder), the
continuing depth of misunderstanding in schools can be startling.
In one school district in Massachusetts, I was told by Harvard
neuroscientist Todd Rose, teachers have even made ultra-restless kids
wear lead vests to weigh them down.
Probably most important, I learned that it's key for a parent of a
seriously distracted child to keep calm.
Children with ADHD can be unusually provocative.
Punishments, particularly the corporal kind, are notoriously ineffective.
So whatever it takes to understand your own role in the family conflict
and tone down your reactions may yield benefits that last a lifetime.
None of this has "stopped" my son's ADHD or my own.
We still struggle and suffer, individually and together.
I still take meds, on occasion, and he knows they're there if he decides
they can help him again.
Meanwhile, we play Ping-Pong, talk and laugh together more than we have
for years, and, as much as a 15-year-old will tolerate, we even
occasionally hug.
Our journey to this somewhat better place took a lot of work, a lot of
persistent trial-and-error and a lot of self-criticism.
And all of that, in turn, took a heck of a lot of time and attention -
commodities in sadly short supply for many of us.
Still, we did save on the ginseng, magnetic mattresses and dolphins.
[end excerpts]
The article is online at:
<http://wapo.st/KenPopeEllison>